I am so excited to say that we have had 4 days without seizures 🙂 –plus G is doing well with coordination, speech and interacting! It is fantastic to have his personality shine at the same time we are having days with no seizures.
Gabriel spiked a 104.7 fever at 2 a.m. Saturday morning. That was a little scary as we never dealt with a fever that high. We called the hospital, chatted with the nurse on call, covered him in cold towels and gave him Tylenol. We are were relieved when the fever broke! It was back up to 103 by 6 a.m. but then it broke again. The Ketogenic diet drastically limits the over the counter medication we can use for G in these situations. He lost his appetite but kept eating at least a little bit. This was a huge relief because when he stops eating things usually go sideways. Not at all glad that he had a raging fever but this is the first “sickness” since being on Keto that he has weathered well 🙂
We have a new keto formula called Ketocuisine avaiable to us for cooking. You literally have to go through the epilepsy clinic to have permission to buy it. Gabriel has been asking if I could make him crackers a lot lately. He especially misses Cheez its. I am happy to say that with our new ketocuisine I made him cheese crackers and he seems to like them. They involve several steps but in keto world they aren’t too labor intensive. (which always make me happy…I’d rather spend time with him then cooking for him).