The facts of today are good.
- Gabriel only had 1 seizure, which was not until 8 o’clock at night.
- He had an EEG that did not show seizure activity.
- He had an awesome time playing with his friend Jack at Crown Center.
Even with many good things it was a roller coaster day. G and I got home about 12:30 from our playdate. Chuck immediately informed us that the hospital had called to inform us that Gabriel’s doctor had scheduled an EEG for him at 1:30. We quickly gathered everything together and hit the road, while calling the doctors office to find out why we were getting the EEG. We found out the EEG was to determine if some new facial movements were seizures.
Since Gabriel was having his first good day since Monday, none of the distinct issues occured. There were several “events” during the EEG but we don’t know what they were. Our doctor called and left a message before we even got home that the EEG was not showing seizures and to call back. By the time we got home and called back we had missed the doctor. Which means we are waiting until Monday. So hard. I am trying so hard not to be consumed by fear and worry.
I was looking up a verse about Moses online and Bible Gateway had the following verse as the verse of the day:
“Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.” Philippians 4:6-7 NIV
The perfect verse for me. It is one I have tried to weave into my life for the last several year. Perfect timing because it was the verse for the day starting at midnight. I read it 12:30…way after I should have been in bed but I was awake nervous and worrying…about my son, my husband, myself….our whole little family. My request to God is that Gabriel gets to be a fully functioning member of society during his life on this earth and that his life is long and full.