Gabriel has had 2 really and I mean really good days! He had his first Occupational and Physical Therapy appointments on Friday (which were in and of themselves wonderful…but I will save that for another day). I think he said more words in his 1 hour occupational therapy session than he has said all year at preschool. Chuck and I kept looking at each in shock over how much the kid was yammering on about EVERYTHING….well except was he was supposed to be focusing on. We don’t think he has any seizures in 2 days (a couple possible episode but not clear)! He has been more active and daring….always a good sign. At the park today he would lay on his belly on the swing and push off with his feet then swing. Believe it or not this takes a lot of balance and strength, so it is not something we have seen in a long time. So nice to have some good things after almost a week of tough times.
I am continually amazed at how exhausted I feel all the time. Even when I get a good break and feel rested, there are more pizzas to make, more meds to prepare, more data to record and more seizures to deal with. I imagine it is how most of us feel with whatever our every day life entails.
I think I have said at least 100 times and I can easily say it 100 more times without it loosing any truth or significance in my life….we, as a family are standing because of the prayers of the saints and the support and care coming from so many sources I cannot even begin to count.
I often think of Moses in Exodus 17:11-12
11 As long as Moses held up his hands, the Israelites were winning, but whenever he lowered his hands, the Amalekites were winning. 12 When Moses’ hands grew tired, they took a stone and put it under him and he sat on it. Aaron and Hur held his hands up—one on one side, one on the other—so that his hands remained steady till sunset.
Doose is a batttle that Gabriel, Chuck and I have to fight. As determined as I am to win this battle my arms are weary. Thank you holding up our hands, through gifts to help us with our trip to Maryland, cooking g’s food, playing with our boy so we can get things done, praying for us, sending us encouraging words.