We just got admitted to children’s mercy hospital for the 3rd time in as many weeks. Today as been a really tough day. It is 10:00 as I type and Gabriel has had 13 seizures today. Including one the car on the way to the hospital. He was eating french fries at the time and we couldn’t tell if he was choking or not. So we called 911 and waited on the side of I-35 for the paramedics to come help. By the time they arrived he was no longer seizing or choking. The ambulance paramedic was the same woman who had taken care of Gabriel on his first visit to the E.R. on Super Bowl Sunday. She remembered us…because of his hair 🙂
The ambulance got us to the hospital and my mom and dad were able to meet us there and sit with us in the E.R. Gabriel has several more seizures in the E.R. and he has had 1 more since we have been admitted to the room. The plan at this second is to keep trying different drugs and see what controls them.
The worst part about today is that he has not totally recovered from a seizure since early afternoon. He is trying to verbalize but has not been able to talk. The doctors are clearly waiting til tomorrow to see if it is just the drugs because when we ask about it, they ask questions like “has he been walking today””does he know who you are?” “Can he understand?” Thankfully we have been able to answer “yes” to all of those. So we are thinking since are all connected that we will have to wait and see until tomorrow. He has been using some of his baby sign for things like “More” to communicate…..which is good…..but it was tearing me up having my super verbal baby trying to talk and getting nothing out.
We are hoping and praying for a better tomorrow.