We just got admitted to children’s mercy hospital for the 3rd time in as many weeks. Today as been a really tough day. It is 10:00 as I type and Gabriel has had 13 seizures today. Including one the car on the way to the hospital. He was eating french fries at the time and we couldn’t tell if he was choking or not. So we called 911 and waited on the side of I-35 for the paramedics to come help. By the time they arrived he was no longer seizing or choking. The ambulance paramedic was the same woman who had taken care of Gabriel on his first visit to the E.R. on Super Bowl Sunday. She remembered us…because of his hair 🙂
The ambulance got us to the hospital and my mom and dad were able to meet us there and sit with us in the E.R. Gabriel has several more seizures in the E.R. and he has had 1 more since we have been admitted to the room. The plan at this second is to keep trying different drugs and see what controls them.
The worst part about today is that he has not totally recovered from a seizure since early afternoon. He is trying to verbalize but has not been able to talk. The doctors are clearly waiting til tomorrow to see if it is just the drugs because when we ask about it, they ask questions like “has he been walking today””does he know who you are?” “Can he understand?” Thankfully we have been able to answer “yes” to all of those. So we are thinking since are all connected that we will have to wait and see until tomorrow. He has been using some of his baby sign for things like “More” to communicate…..which is good…..but it was tearing me up having my super verbal baby trying to talk and getting nothing out.
We are hoping and praying for a better tomorrow.
Gaye Russell said:
Good night sweet G and Mommy and Daddy. I love you.
Amy, thinking and praying for you guys! I can’t imagine what you must be feeling.
Oh Amy, what a terrible day. I want to jump into my car and drive there just to give you a hug! And Gabriel too. I am praying along with so many others for your precious boy, and for your heart. I know it must be so hard to watch him suffer. Love you.
I am praying for all of you. I pray that his doctors find some answers soon, and treatment that will work to slow and/or stop his seizures. I pray for strength and patience and guidance for you and Chuck.
Tracy Bradley Wilson said:
Prayers to you all. Gay keeps the Abernathy pray warriors hopping and Gabriel is at the top right now along with you both. I have a seisure disorder and no his feeling of not being verbel and waking scared cuz you dont know what happened. Gabriel is at the top of my prayer list.
Amy, your strength amazes me so much! I’m praying for you!
Amy, I am Helen R’s mom and I wanted you to know there are people in Maine praying for you, Chuck and Gabriel. I love his name! I also love the name of your blog – isn’t that what we do all through life, figure out how to love, how to live, how to cast our cares on Him, and how to best bring God glory in every circumstance.
Praying for peace and healing.
HI RoseAnne, Thank you so much for your kind words and prayers! Your daughter is an amazing woman, who I am proud to call friend.
Jess & Haleigh said:
Just wanted to let y’all know that we’re praying for y’all, as well as the team of doctors & nurses taking care of Gabriel. Sending many prayers & hugs your way.
Susanne Dilley said:
Amy, my heart is breaking for you, your husband & sweet Gabriel. I’m so sorry you are going through this. I can only imagine how scary it must be. But God is faithful and as hard as it is to imagine, He loves Gabriel even more than we, as parents, are capable of loving our children. He will take care of your family! Stay strong and know that so many are praying for a swift & complete recovery/solution.
Jess & Haleigh said:
Praying for y’all. I know how hard it is to sit & see your child in pain, and you not have any way of controlling it. We’re sending many prayers & hugs your way. Please let us know what we can do to help.
Just caught a glimpse of Gabriel sleeping. He looked so precious and I just wanted to give him hugs and kisses! That sweet head and that hair! I can see why that was memorable to the ER lady! Glad you have family there rallying around you. We are all here too. Praying for all of you and those caring for G.
kimberly and charlotte said:
We are saying lots of prayers that Gabriel is out of the hospital soon! Please let us know if there is anything you need!