We had a really good steak of 5 seizure free days that ended yesterday, on Father’s Day. He had 4 drop seizures and 1 big gran mal that was 2 1/2 minutes.
He has not been interested in food since then but has eaten the majority 99% of his 2 meals today. When I gave him his afternoon medicine he threw it up right away. I knew from experience that if the meds don’t stay in we need to redose. I set to getting his meds ready again and he rested on the the kitchen floor. The second try was a repeat of the first.
At this point his stomach is totally empty and he has no medicine in him. Just took his temp and he has a slight fever 100.5. Sigh. We have a call into the doctor to see what happens next.
I know we are making progress but it seems like everytime we get our footing there is another big set back.
Oh, Amy-don’t call it stupidity. It’s just Unpredictable and you were doing what you knew was right. You are doing an amazing job handling all of this and he is so lucky you are his Mom. Sorry to hear yesterday was not a good day after so many good ones. I’ll call in a little while to check about tonight. Love you!
So sorry to hear that Amy! Will continue to pray for all of you and that the number of good days will continue to increase until there are no more bad days anymore!
We continue to pray each day for that fabulous little guy!