I woke up this morning to hear Gabriel giggling with Grandma Gaye (who had the spent the night with us in the hospital). He is a solid 85% this morning. Speaking in sentences and tearing around the hospital like his own personal play ground. 🙂
He has not had a seizure since 2 a.m. Thursday morning. That means 3 days. Our pattern so far has been…new medicine 2, 3, or 4 good days and then seizures. We are cautiously optimistic….but on high alert for seizures. It is a challenge to be fully present and enjoy the good moments.
Chuck & Amy,
I am delighted by your good news this morning. I can appreciate your cautious optimism. I am praying that the seizures are gone for good!
Steve
I also want to say how much I enjoyed our conversations on Thursday and Friday, and the prayers we joined in for your precious son, Gabriel.
We did as well Steve! I have read and reread 1 John 4 since Friday. Perfect love casts out fear!
Praying all continues to progress. I’ve learned that sometimes baby steps are huge! Love to your family. Cathy W.
Amy,
I continue to pray for you and your family.
Be sure to take care of yourself,
Stephanie
i remember waching Cameron have his seizure and i wigged out. we were blessed and the first medicine we tried worked and he hasnt had a seizure since august 2008. wow 4 years ago and the image of him that day is still crystal clear. ive been praying for you all during this remembering that day. i am so glad he is getting better and i will continue to pray for all of you. God bless