I am typing the blog today as he takes his 3rd nap of the day.  He is taking LOTS of meds right now. While his body is adjusting,  his energy and sleep patterns remain crazy.

He had 3 seizures in the middle of the night last night. 2 short ones (under 1 minute) and one longer one (over 4). Needless to say this messed up all of over sleep for night. I woke up 10 minutes before my preschool class starts—YIKES!

I was glad I got to go to work today. I love teaching and have an especially loving class full of sweet kids.  They greet with me with lots of hugs, energy and stories. Being around my class reminds me to hope that Gabriel will be back and school having fun soon as well. It was great to see my school kids and get encouragement and support from the amazing women I work with.

He had a fun day playing with my parents today. They took him to Chick-Fil-A. They babysit on Thursdays while I work and one of their weekly traditions is to spoil him with some fast food. So this was the last time for that tradition…at least for the foreseeable future.  I think Gabriel and I will have several fast food meals this weekend before we go into to start the Ketogentic diet on Monday.

Thanks for following our story and helping me process our life events.

Our normal has become so skewed lately, that I almost started this post with”Today was a good day”. Which it has been a good day because he has not had any seizures! I think I am going to classify today as a good, “bad day”.  Meaning he is not totally himself yet.   He pretty wobbly-falling down a lot and tripping , speech is slow to come and difficult to understand as if he were really drunk, and he is very emotional. Poor Kid. I hate that he is sad and I can’t fix it.

The good part is he has had LOTS of play time today. He played with his little people train track, spent over an hour outside “mowing” and played pizza party with me. His play on days like these is very interesting. He spent almost 4 straight hours repeating the same actions of lining the trains up off the tracks, driving them around the track and lining them back up again.  It seems that repetitive tasks like this calm him when he isn’t fully functioning. He seems compelled to do them….I guess kind of like a pregnant woman nesting. He did similar play at the hospital a few weeks ago.  His behavior today has been almost identical to the end of our stay at the hospital last time. It has been easier for me this time for a couple reasons.  1. I know he comes back to himself. 2.He does not have the added frustration of wires hooked to him.  It has been much easier and more comfortable to manage at home. So I guess that upside is “If” this happens again I know we can handle it at home. The downside is the reality of our lives that “If” should really be when.