• Sitemap

Daily Archives: March 16, 2013

Celebrating 4!

16 Saturday Mar 2013

Posted by Amy in Uncategorized

≈ 5 Comments

Gabriel turned 4 last week 🙂 I remember joking “we managed keep him alive” at his first and second birthdays. Last year, he spent his 3rd birthday in the hospital, the first of the 4 stays that will forever mark BEFORE and AFTER in our lives. This year, I feel like we can truly celebrate not only keeping him alive for a year but, fighting for every good moment and the highest quality of life.

Part of fight has included the recent addition of yet another medication. So far it is controlling seizures. We are officially in the double digits of days without seizures. 🙂 His energy levels are pretty low, lots of sleeping, but he is having lots of good moments too 😉 This is the first time we’ve hit double digits since last April, when we thought we had beat them with a 3rd med and would not have to do the ketogenic diet.

Today, we had his birthday party. We kept is just family this year. He got tons of fun new things to play with. The winning present this year was his scooter. He rode it all over the house, he used it transport all of his others presents as well 🙂

He may be on the ketogenic diet but Nonna was determined that he would still have a birthday cake and took on the task.
IMG_5292

Thank you Pinterest for the construction site idea 🙂
IMG_5277
Gabriel had a grand time just playing with his cake. As far as he was concerned he needed to “work” on his construction site!
IMG_5290

Great birthday. Going to bed with smiles, as well as hopes and prayers for an amazing 4th Year!

♣ Subscribe to FIO

♣ Helpful Websites

  • Charlie Foundation
  • Danny Did Foundation
  • Doose Syndrome
  • Keto Cook

♣ Recent Posts

  • Perspective
  • Back to Blogging: I’m here to Call Back!
  • Celebrating Successes
  • “The Eagle Has Landed”?
  • So far…so GOOD!

♣ Recent Comments

  • Cheryl Roberts on Celebrating Successes
  • Amy on Starting the Descent—Weaning Felbamate
  • carole Sandels on Starting the Descent—Weaning Felbamate
  • Suzanne on “The Eagle Has Landed”?
  • Sarah Mackay on So far…so GOOD!

♣ Archives

  • July 2019
  • June 2019
  • May 2017
  • November 2016
  • October 2016
  • June 2016
  • February 2016
  • January 2016
  • December 2015
  • November 2015
  • July 2015
  • June 2015
  • February 2015
  • December 2014
  • November 2014
  • October 2014
  • September 2014
  • July 2014
  • June 2014
  • May 2014
  • March 2014
  • February 2014
  • January 2014
  • December 2013
  • November 2013
  • October 2013
  • September 2013
  • August 2013
  • July 2013
  • June 2013
  • May 2013
  • April 2013
  • March 2013
  • February 2013
  • January 2013
  • December 2012
  • November 2012
  • October 2012
  • September 2012
  • August 2012
  • July 2012
  • June 2012
  • May 2012
  • April 2012
  • March 2012

♣ Categories

  • Doose Syndrome
  • Family
  • Gabriel
  • How to help
  • Ketogentic Diet
  • Uncategorized

Proudly powered by WordPress Theme: Chateau by Ignacio Ricci.